Resources
ALL IN® offers important information and useful tools to help you better manage lupus nephritis. Sign up to receive information about upcoming events, helpful tips, recipes, and more.
The ALL IN Lupus Nephritis Awareness Kit
To help empower those living with or at risk of developing lupus nephritis, ALL IN has created the Lupus Nephritis Awareness Kit with insights from members of the community.
Inside the kit you'll find information and tools to help increase your understanding of lupus nephritis along with tips to help you manage living with the disease. If you're interested in receiving a kit, click below.
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Be Your Best Self-Advocate
These guides include suggested questions and discussion topics that could be helpful to review with your healthcare provider. There are two versions available, depending on where you are in your lupus nephritis journey. Be sure to bring one with you to your next appointment.
Sara
Diagnosed with lupus nephritis in 2004
"I have personally found that advocating for yourself is probably the most important part of the doctor/patient relationship. You have to go in armed and ready—not in a confrontational way, in a collaborative way."
Don't hesitate to ask for help
If you need help or support, consider reaching out to a family member, friend, or co-worker. Contact your doctor if you have any health-related questions. You may also want to consider looking into supportive counseling if needed.
Coping with COVID-19
Many people are coping with feelings of uncertainty, anxiety, and loneliness due to the ongoing COVID-19 pandemic. For those living with lupus nephritis, concerns about health and wellness may be even greater.
ALL IN wants to help you feel less alone during this pandemic. Our hope is that our community can help you feel connected to others living with lupus nephritis. To support you during this time, we’d like to share with you some activities you may find helpful—not only in connecting with others but in caring for yourself.
Socialize virtually
Although we might not be able to socialize with others in person right now, phone calls, social media sites, and online meeting tools may help us feel connected with those we love while keeping ourselves and others safe. Consider joining the ALL IN for LN community on Facebook to connect with others who are affected by lupus nephritis.
Build a support network
It's important to have people such as family, friends, and co-workers that you can turn to for support. Another option is joining an online support group. In an online community, you can talk about your feelings or concerns in a caring and supportive environment while listening to others share their own experiences. To hear about the experiences of other people living with lupus nephritis, watch our video series here.
Participate in an activity you enjoy
Living with lupus nephritis may feel overwhelming at times. Engaging in an activity you enjoy such as cooking, gardening, walking, or reading may help refocus your attention and provide a much-needed break during challenging times.
Practice self-care
Proper rest and nutrition, as well as appropriate physical activity, are important healthy habits for anyone, but especially for those living with lupus nephritis. To learn more about diet and exercise with lupus nephritis, click here. Always talk with your physician before you start or make any changes to your diet and exercise plan.
Sources of Information About COVID-19
The following resources offer information about COVID-19 for people living with lupus nephritis and lupus. Please note that Aurinia does not endorse or monitor the activities and content of the following National Advocacy Groups or Government and Health Agencies. The following resources offer information about COVID-19 for people living with lupus nephritis and lupus.
Bringing lupus nephritis out of the shadows
ALL IN teamed up with Access Health on Lifetime to deliver a TV segment featuring Rheumatologist Dr. Alvin Wells, Nephrologist Dr. Dawn Caster, and lupus nephritis warrior and advocate Monique. Watch this video to learn more about lupus nephritis and the importance of routine urine testing.
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